CAPAIR stands for Cicatricial Alopecia Patient Assessment &Impact Report. SAF is gathering and publishing this data report that will outline the burden of disease for scarring alopecia patient community. This report will be the first of its kind on cicatricial alopecia and will provide validated data from patients and the physicians who treat them.
The study methods include focus groups, survey development, IRB-approved protocol, study validation, dissemination, data analysis, outcome measurements, report development and review, and publication.
The study outcomes include a comprehensive publicly available, validated report that identifies the unmet needs of the scarring alopecia patient community for clinical and scientific research purposes, identification of psychosocial priorities needed to be addressed and attention for physician and other healthcare education for earlier detection and diagnosis to prevent progression.
There has never been this type of study before, which is critical toward gaining the attention of researchers and industry.