CONNECT. SUPPORT. THRIVE.

SAF invites you to attend our regular virtual support group meetings. The virtual support group meetings are very popular and evolved from in-person meetings during the recent pandemic. Participation continues to grow with new sign ups every month. Meetings are held monthly and participants range from newly diagnosed to longtime members and everyone in between. We meet virtually on zoom and then break up into small groups depending on the number of people.

Thank you for this new format and monthly offering. Three months is definitely too long between groups, and especially if you have to miss one.  I liked the idea of a breakout group, it makes the discussion more personable and manageable.

Gina M., SAF Member

Congratulations on your first international monthly Zoom call. All of the beginning intro and excitement from the med students about going to Capitol Hill, and what is upcoming was impressive.

Doreen K., Support Group Attendee

Terrific meeting!  It was fantastic to hear from Debra, Jean and others from CARF, as well as from the medical students (what a great idea to include them!) on the advocacy and other work going on behind the scenes.  I liked the breakout rooms to keep the number of participants manageable, and our facilitator kept the conversation flowing. Thanks again for a terrific presentation, and I look forward to next month’s meeting!

Janet S., SAF365 Member

I want tell you how grateful I am that SAF listened to our needs and is giving monthly support group meetings a try. I SO appreciate the more frequent meetings and the opportunity to meet more people who are going through the ups and downs of scarring alopecia, to gain more knowledge through other people’s experience, and to just connect.

Robin Y., Newly Diagnosed

Virtual Support Group Meetings

All Scarring Alopecia Types

SAF hosts monthly meetings on the first Tuesday of each month beginning at 7:30 pm EST.  All who experience scarring hair loss are welcome. Click the link below to be added to the invitation list to receive the zoom meeting link.

CCCA Specific in the United States

SAF hosts a Central Centrifugal Cicatricial Alopecia (CCCA) specific virtual monthly support group meeting on Sunday evenings at 7 pm EST. Dates in 2023 will be confirmed shortly. All who are diagnosed with CCCA in the United States are welcome to attend. Click the link below to be added to the invitation list to receive the zoom meeting link.

CCCA Specific in the United Kingdom

SAF hosts quarterly Central Centrifugal Cicatricial Alopecia (CCCA) specific support group meetings for members in the UK. Meetings are held at 7 pm BST.  Dates for 2023 are: January 24, April 19, July 19, and October 18. Click the link below to be added to the invitation list to receive the zoom meeting link.

CCCA Specific in South Africa

SAF hosts Central Centrifugal Cicatricial Alopecia (CCCA) specific support group meetings in South Africa. Dates in 2023 will be confirmed shortly. All who are diagnosed with CCCA in South Africa are welcome to attend. Click the link below to be added to the invitation list to receive the zoom meeting link.

Virtual Meeting Benefits

* More frequent meetings and set schedule. Connect on the go, from anywhere.

* Develop relationships with other patients, within and outside of your immediate geographic area. Get to hear “my story” from multiple support group leaders.

* Meetings for everyone, not just those in states with established, in-person support groups.

* Med Students will be available to make presentations at most of these meetings.

Important Information

Please register to receive the meeting link.

Please note, changes DO NOT impact the CCCA-USA and CCCA-UK meetings.  Likewise, once groups decide to resume meeting in-person, information will be listed on SAF’s website.

Support Group Leaders

Kelli, SG Leader

Abolore, SG Leader

Sandra, SG Leader

Courtney, SG Leader

Marilyn, SG Leader