CAPAIR stands for Cicatricial Alopecia Patient Assessment & Impact Report. SAF is sending out an anonymous survey to collect data from the scarring alopecia community that will outline the burden of this disease. The data will be compiled into a comprehensive report that will be the first of its kind on scarring alopecia.
The CAPAIR study is needed to drive the much-needed attention to this growing epidemic. It is an online anonymous survey for participants to self-report about their medical history, journey to diagnosis, physician access and knowledge, treatments, time and financial impact, and quality of life. .
The study outcomes include a comprehensive report that identifies the unmet needs of the scarring alopecia patient community for clinical and scientific research purposes, identification and attention to the associated psychosocial issues, and need for medical education so scarring alopecia can be identified earlier and prevent disease progression.
There has never been this type of study before, which is critical toward gaining the attention of researchers and industry.