As the leaves begin to change and cooler days approach, it’s the perfect time for us to connect and share some exciting updates. We appreciate your positive response to our brief, frequent e-newsletters, so let’s keep it short, sincere, and important!
Here’s what SAF has been up to:
1️⃣ Building Powerful Partnerships: This year, we’ve been focused on building partnerships with industry and pharmaceutical leaders, and it’s paying off. SAF is now in collaboration with L’Oreal, Pfizer, Eli Lilly, and Mt. Sinai Medical Center, with more exciting collaborations in the works.
2️⃣ Sharing Valuable Research: We’re submitting abstracts for poster and oral presentations at industry meetings, sharing insights from our CAPAIR study. “The Voice and Burden of Scarring Alopecia” questionnaire is grabbing attention from pharma and industry leaders.
3️⃣ Raising Awareness: We’re working with an expert physician-scientist committee to quantify the true prevalence of scarring alopecia. The patient population is higher than reported, and we’re committed to shedding light on this issue.
4️⃣ Advocacy for Insurance Coverage: We’re advocating for official ICD-10 medical coding for FFA and CCCA, making treatments eligible for insurance reimbursement.
5️⃣ Educational Webinars: Our recent webinar with Dr. Keira Barr was a success. Stay tuned for another live webinar this fall, where you can meet hair loss physicians, join breakout sessions, and participate in live Q&A.
6️⃣ Supportive Community: We continue to host monthly online support meetups, with growing attendance.
7️⃣ Stay Informed with “The Buzz”: Don’t miss our biweekly e-newsletter, “The Buzz,” featuring SAF-driven initiatives and important scarring alopecia topics.
Your Board of Directors and I are committed to working tirelessly on your behalf. SAF will remain a valuable resource for our members and a strong advocate in representing you to pharmaceutical and governmental entities.
Together, we’re making a difference in the fight against scarring alopecia. 🤝