Advocate with Us

Let’s advocate for the scarring alopecia community

Scarring Alopecia is not well recognized, understood or researched. Increased education of our community and elected officials will help them recognize the rising number of patients, the lack of physicians familiar with Scarring Alopecia who may provide early detection, and the impact of Scarring Alopecia has on the lives of patients.

Introducing SAF’s NSAAM Facebook Frame

Join SAF in promoting awareness and advocating for more support and education about scarring hair loss. Simply login to Facebook, click Update your Profile Pic and select Add Frame. In the search box type “NSAAM 2021” and click to add to your Facebook profile picture! Be sure to use the hashtags #Let’sGetVisible and #NSAAM2021 to show your support for the scarring hair loss community!


#LetsGetVisible #NSAAM2021

Learn how you can spread awareness about scarring alopecia to your family, friends and hair care professionals. The first step in advocacy is awareness – here’s what you can do to help spread the word!

Improve SAF Services

We work in partnership with patients, medical and industry professionals to improve the patient experience by providing a platform to voice what matters most to the scarring alopecia community.

Scarring Alopecia Advocacy Ambassadors

Our Advocacy Ambassadors will be the voice of the scarring alopecia community to make sure it’s understood and recognized at various levels of government.

Raise Funds and Donate today!

SAF is a small nonprofit organization, funded solely by individual gifts, public donations, and membership fees. Many people do not realize SAF does not receive financial support from pharmaceutical, industry or government sources. We operate on a very limited budget, with a small part-time staff.  From workplace giving, Amazon Smile shopping, grassroots fundraisers, to cash donations, SAF appreciates your support!

Thank You!  With your donation, #LetsGetVisible will help the scarring alopecia community find the life-changing education, support, advocacy and research they need.  Donate today and together we will get there even faster!

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Contact Us

Contact Us: Scarring Alopecia Foundation • PO Box 1322, Kulpsville, PA 19443 • 267.613.9811 •