CONNECT. SUPPORT. THRIVE.
Welcome to SAF’s Support Group Page. SAF has moved to a monthly support group model to ensure all patients have the opportunity to join as many meetings as possible.
It goes without saying that the past few years required a great deal of flexibility. SAF’s ability to pivot and move to a virtual platform was met with great success and made it clear SAF members want to connect. Our new monthly meetings will allow members to share and connect more frequently than ever before!
Thank you for this new format and monthly offering. Three months is definitely too long between groups, and especially if you have to miss one. I liked the idea of a breakout group, it makes the discussion more personable and manageable.
Congratulations on your first international monthly Zoom call. All of the beginning intro and excitement from the med students about going to Capitol Hill, and what is upcoming was impressive.
Terrific meeting! It was fantastic to hear from Debra, Jean and others from CARF, as well as from the medical students (what a great idea to include them!) on the advocacy and other work going on behind the scenes. I liked the breakout rooms to keep the number of participants manageable, and our facilitator kept the conversation flowing. Thanks again for a terrific presentation, and I look forward to next month’s meeting!
I want tell you how grateful I am that CARF listened to our needs and is giving monthly support group meetings a try. I SO appreciate the more frequent meetings and the opportunity to meet more people who are going through the ups and downs of scarring alopecia, to gain more knowledge through other people’s experience, and to just connect.
Virtual Support Group Meetings
Support Group Leaders