Advocating for Scarring Alopecia as Part of Hill Day for the Coalition of Skin Diseases
Advocating for Scarring Alopecia as Part of Hill Day for the Coalition of Skin Diseases By Larraine Bernstein This past April, I had the privilege of representing the Scarring Alopecia Foundation at the Coalition [...]
Scarring Alopecia (FFA) Clinical Trial
A Trial to Assess the Effect of Delgocitinib Cream 20 mg/g on the Molecular Signature, Safety, and Efficacy in Adults With Frontal Fibrosing Alopecia Click HERE to learn more about this open trial.
2022 Scarring Alopecia Grant Report
Click HERE to view the report
Management of Scarring Alopecia with Jerry Shapiro, MD
Management of Scarring Alopecia CARF MSAB member, Jerry Shapiro, MD shares his presentation on the difference in scarring alopecia at the Maui Derm NP+PA Fall Conference. Click HERE to view the presentation information [...]
How to Advocate with Your Insurance Company for Medical Wig Coverage
How to Advocate with Your Insurance Company for Medical Wig Coverage By Bria MidgetteCicatricial, or scarring, alopecia is an inflammatory condition in which the hair follicles are destroyed and replaced by fibrous tissue resulting in [...]
Shedding Light on Shedding: How I Navigated Female Hair Loss
Shedding Light on Shedding: How I Navigated Female Hair Loss I wake up, brush the loose hairs off of my pillow and take a cool shower, delicately washing and conditioning my hair with [...]
Medical Treatment Options for Hair Loss: Differences and Similarities in Common Medications Used for Cicatricial (Scarring) Alopecia
Medical Treatment Options for Hair Loss: Differences and Similarities in Common Medications Used for Cicatricial (Scarring) Alopecia Jennifer A. Wintringham Cicatricial (scarring) hair loss has a variety of different treatment options which can [...]
Aloe Vera, Castor Oil and Coconut Oil on the scalp of those with Cicatricial Alopecia. Help or Hindrance?
Aloe Vera, Castor Oil and Coconut Oil on the scalp of those with Cicatricial Alopecia. Help or Hindrance? By Sherifat A. Ademola MD Candidate, Class of 2022 Brody School of Medicine at East Carolina [...]
NSAAM
SCARRING ALOPECIA ORGANIZATION LAUNCHES AWARENESS MONTH THIS SEPTEMBER Kulpsville, PA – September 1, 2021. The Cicatricial Alopecia Research Foundation (CARF) announces the first-ever National Scarring Alopecia Awareness Month (NSAAM) launching September 1, 2021. There [...]
Meet Our Members – Mary B.
Mary B. - FFA The Perfect Storm Sometime between 2010 and 2011, and maybe even for a few years before, a perfect storm was brewing under my [...]
Meet our Members – Tina C.
Tina C. - LPP My LPP Journey My alopecia journey began in May 2009 when I was 50 years old. My parents both lost their body hair [...]
Meet our Members – Jacqui S.
Jacqui S. - CCCA Then she lived! My journey with CCCA Then, she lived! Hey everyone, I’m Jacqui and I’m 36. My journey with CCCA likely started [...]
Meet our Members – Sandra P.
Sandra P. - LPP We are all a unique work of art. If I wanted someone to see my inner beauty and not judge me by my hair loss…it had to [...]