Advocating for Scarring Alopecia as Part of Hill Day for the Coalition of Skin Diseases By Larraine Bernstein This past April, I had the privilege of representing the Scarring Alopecia Foundation at the Coalition of Skin Diseases (CSD) Capitol Hill Day in Washington, D.C. Like many of you, I suffer from Frontal Fibrosing Alopecia and [...]
Shedding Light on Shedding: How I Navigated Female Hair Loss I wake up, brush the loose hairs off of my pillow and take a cool shower, delicately washing and conditioning my hair with personally customized products from Prose before letting it air dry. I unclog the dark clump from the drain and clean up [...]
SCARRING ALOPECIA ORGANIZATION LAUNCHES AWARENESS MONTH THIS SEPTEMBER Kulpsville, PA – September 1, 2021. The Cicatricial Alopecia Research Foundation (CARF) announces the first-ever National Scarring Alopecia Awareness Month (NSAAM) launching September 1, 2021. There are countless numbers of underserved patients suffering from scarring alopecia, a permanent, inflammatory hair loss condition with no known cure or [...]
Mary B. - FFA The Perfect Storm Sometime between 2010 and 2011, and maybe even for a few years before, a perfect storm was brewing under my skin unbeknownst to me. External stressors were ramping up, too. My two older sons were starting at two new schools, my [...]
Tina C. - LPP My LPP Journey My alopecia journey began in May 2009 when I was 50 years old. My parents both lost their body hair at a fairly young age, so I didn’t think that it was unusual that my skin was as smooth as a [...]
Jacqui S. - CCCA Then she lived! My journey with CCCA Then, she lived! Hey everyone, I’m Jacqui and I’m 36. My journey with CCCA likely started when I was 16 or 17, but symptoms (itching/burning) started much younger. Unfortunately, not enough was known about CCCA back then, [...]
Sandra P. - LPP We are all a unique work of art. If I wanted someone to see my inner beauty and not judge me by my hair loss…it had to start with me. I don’t feel sorry to see my scalp as it is my soul what makes me shine. [...]
CARF in the news! Lindsay Martell, a CARF member was recently interviewed by Fox 11 Los Angeles News about her article in Veracity Self Care - What I gained when I lost my Eyebrows. Click HERE to view the article Click HERE to view the television interview Interested in sharing your story with CARF? Click HERE [...]
Common Ingredients in Shampoos and Conditioners Can Make Inflammation Worse in Lichen Planopilaris (LPP) and Frontal Fibrosing Alopecia (FFA) By James Pathoulas, Kelly Flanagan, and Dr. Maryanne Senna An allergen is a substance that causes an inflammatory reaction when it contacts the body. Signs of an inflammatory reaction on the scalp include redness, itching, and dandruff-like [...]
Common Ingredients in Shampoos and Conditioners Can Make Inflammation Worse in Lichen Planopilaris (LPP) and Frontal Fibrosing Alopecia (FFA) By James Pathoulas, Kelly Flanagan, and Dr. Maryanne Senna An allergen is a substance that causes an inflammatory reaction when it contacts the body. Signs of an inflammatory reaction on the scalp include redness, itching, and dandruff-like [...]
